UK Paediatric ITP Registry

ITP Support Association The UK Paediatric ITP registry is a multi-centre study designed to collect prospective data on all new cases of childhood immune thrombocytopenic purpura (ITP)

The database will continue to collect data for many years about children whose ITP fails to resolve. Clinical data, bleeding severity, platelet counts and management will be recorded.

More information on the study, including the Protocol, can be read here

The Registry is generously supported by the ITP Support Association

Recruitment is open to all patients between the ages of 2 months and 18 years that have been diagnosed at any time.
Further information sheets and letters of invite can be downloaded from the Documents page.
Also see the specific 'Information for Patients' and 'Information for Consultants, GPs, Paediatricians & Haematologists' sections of the web site.

 

Centres wishing to take part in the UK Paediatric ITP study must contact Nichola Seymour in the first instance, via email, via the Registration of Interest form (for NHS Net users only) or call 0161 701 8422.
Once confirmed, users will be issued with a username and password to enable access to the database.


Some users are unable to visit the web site from the links provided, please copy
https://nww.uk-itp.mdsas.nhs.uk/index.htm into the address bar to enter the registry


Enter the registry here

 

Please note that only NHS Net users will be able to access this system.

 

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Existing Users Sign In

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If you have forgotten your username/ password you can still use this button

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If you are interested in participating in the registry, please contact the team on 0161 701 8422 or complete an online form


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Information for Consultants, GPs, Paediatricians & Haematologists

We hope that you will agree to participate in this study which has COREC approval and is supported by the ITP Support Group.
- Read information on the ITP registry for consultants, GPs, paediatricians and haematologists

- North-West guideline for the management of child with suspected ITP


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Information for Patients & Families

We are trying to gain more information about the medical condition Immune Thrombocytopenic Purpura, your child could help...
- Read information for patients and families